Pediatric-onset lupus (pSLE) accounts for approximately 20% of lupus cases, and young people living with lupus face unique challenges related to school, mental health, transition to adult care, relationships, treatment adherence, and self-advocacy. Despite these challenges, youth voices are often underrepresented in research, advocacy, and program development.
 

The Youth Advisory Board was created to ensure that the perspectives of young people with lupus help shape the resources, programs, research priorities, and advocacy efforts that affect them.
 

Young adults ages 18–24 who were diagnosed with lupus during childhood or adolescence are encouraged to apply. Members will have opportunities to:
 

Share their lived experiences and perspectives
Advise on patient education materials and programs
Contribute blog posts, social media content, and awareness campaigns
Participate in community events and advocacy initiatives
Provide feedback on research and patient-centered projects
Connect with peers and build a supportive community
 

By elevating youth voices, we can create more effective resources, strengthen advocacy efforts, and ensure that the needs of young people living with lupus are heard and represented.